News

News

Closing during the holidays

26 November 2020

We would like to inform you that our offices will be closed from December 21 to December 31 for the holiday season.

The entire Parkinson Québec team will be back on January 4, 2020.

 

Specialized resources to know

We invite you to contact the following specialized resources if you wish to speak directly to someone:

  • Écoute entraide
    The line is aimed at people with all kinds of problems, including:
    – Calls related to mental health
    – Depression
    – Anxiety
    – Solitude and isolation
    – Separation
    – Family problems, etc.

Montreal: 514 278-2130 / Toll-free: 1 844 294-2130
The crisis line is available 7 days a week, from 8 a.m. to midnight.

  • Info-Santé: 811
  • Centre de prévention du suicide de Québec
    Toll-free: 1-866-277-3553
    24 hours a day
    7 days a week

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Building your care team

24 November 2020

Your needs in terms of care and support will evolve as the disease progresses. You will need a care team to accompany you and to support you physically and emotionally.

 

Parkinson’s disease is a complex disease. It requires a multidisciplinary approach. In addition to your neurologist, your healthcare team should include a variety of healthcare professionals who will be able to suggest different therapies to treat all of the facets of the disease.

Some of these professionals are:

  • Neurologists
  • Speech therapists
  • Nutritionists
  • Physiotherapists
  • Occupational therapists
  • Chiropractors
  • Kinesiologists
  • Psychologists

 

When is it necessary to assemble this care team?

You should start looking for members of this care team relatively early. Not only can it take time to find professionals who specialize in Parkinson’s disease, but some of their early interventions can have long-term benefits.

By consulting early, you have the chance to quickly adopt good habits and to plan the evolution of your needs according to that of the disease.

Your neurologist, pivot nurse or social worker are the people who will direct you to these professionals accessible in your movement disorders clinic, in a CLSC or in the private sector.

 

Who is the most important part of this care team?

You are the most important element of the healthcare team. You are a specialist in Parkinson’s disease. You alone live with the disease. You are the one who is able to feel the symptoms and to describe how they are affecting your daily life.

Your loved ones are also important parts of this team. They are also able to bear witness to the obstacles you are living through. They play a daily role in your health and well-being. You and your caregiver are going to build the heart of this team. The success of this partnership is based on a mutual understanding of the kind of help and…

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Research : The Risks of Concussion

4 November 2020

A concussion can increase the risk of developing Parkinson’s disease by 57%

Winter is approaching, which announces the beginning of hockey season. Whoever your favorite team is, you know that this sport bears certain risks, notably the risk of getting a concussion. Concussions are movements of the brain in the skull linked to blows to the head, neck or face.

These concussions, often benign,belong to the category of mild traumatic brain injuries. They should not, however, be taken lightly. They appear to increase the risk of developing several neurological disorders, including Parkinson’s disease.

The study

A study led by a group of researchers from Manitoba evaluated the increase in the risk of developing Parkinson’s disease, dementia, a mood and anxiety disorder or an attention-deficit hyperactivity disorder after a concussion.

It is not the first study to demonstrate a link between Parkinson’s disease and concussions. Here, researchers have compared medical files from more than 47,000 people who have had at least one concussion, with those of 139,000 people who had never had a concussion, for a period of 25 years.

Results

The study demonstrates that independently of age, sex and socioeconomic status, a person who has had a concussion has an increased risk of being diagnosed with Parkinson’s disease, dementia, a mood and anxiety disorder disorder or an attention-deficit hyperactivity disorder.
The risks are increased by:

  • 57% for Parkinson’s disease
  • 72% for dementia
  • 39% for attention-deficit hyperactivity disorders
  • 72% for mood and anxiety disorders.

Repeated concussions further increase the risk of developing Parkinson’s disease and dementia. The risk of having Parkinson’s more than triples after 3 concussions.

 What does this mean?

The study confirms that concussions are an important risk factor of Parkinson’s disease. Indeed, having a concussion increases the risk of developing Parkinson’s disease by 57%. Additionally, this risk is more than tripled when a person has had at least…

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Testimony of Hélène Tousignant

3 November 2020

Taking care of myself while taking care of the other.

An ability to bounce back in spite of hardship

An old friend recently revealed to me that he has always been astonished by my ability to bounce back when faced with difficult situations. Oh come on !… He tells this when I have just gone through a pretty difficult time, thank you very much!

Marc, my sweet love, is losing his strength; we’ve been going from one specialist to the next: physiotherapist, nutritionist, speech therapist, neurologist, trainer, etc. He is suffering more and more, has lost his beautiful smile which made me melt, he is functioning in slow motion and we have to constantly adjust…

Bounce back yes, but agree to receive help

As for me, I was burning myself out. In short, yes, it is undoubtedly true that I have an aptitude for bounding back, but I also had to start accepting help. Indeed, I had become very anxious: always worried about how he is, having a hard time sleeping and disconnecting. I felt the need to talk about it with my doctor. He made me understand that this “trip” with Marc and with Parkinson’s disease will last a long time and, to stay on track, I needed to recharge my batteries and especially get a good night’s sleep!

I said “ok” and, a month later, I was back on feet. I took the time to gift myself “small pleasures” every day, to read, to clear my thoughts by doing puzzles, knitting, playing music around the house, writing, painting, tending to my plants, and I started to write down these small daily pleasures, to remind myself how much progress I’d made in my quest for “self-care”.

Moving forward and demonstrating resilience

Marc and I, we have the privilege of meeting with a psychosocial worker who really…

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National Caregiver Week 2020

2 November 2020

Caregivers act with affection and love and are often close to exhaustion but also to financial impoverishment. There are solutions!
Discover the campaign and tools of the Regroupement des aidants naturels du Québec.

Exhaustion and impoverishment

To love without sparing oneself. Caregivers perform an essential invisible work with the most vulnerable population in Quebec. Thanks to their devotion and love, Quebec society as a whole benefits.

Through this campaign, RANQ wish to thank the caregivers who act with love but also to claim the importance of supporting them on several levels:

  • physical,
  • psychological
  • financial,

Solutions exist so that caregivers can fulfill their role while remaining in balance.

How do you take care of yourself?

There are some simple actions to take care of yourself and become aware of the situation.

Be aware of your limits.

As Parkinson’s disease progresses, it can be increasingly difficult to care for someone with Parkinson’s disease on your own. Find out about home care, day programs, or help from family members.

 

Give yourself some time

All caregivers regularly need a “rest period”. Take a break and meet friends. Ask for and accept support. Make a list of tasks that others can do. They want to help – include them in the care plan.

Find someone you trust when you are depressed or need to confide in someone. Get help when you feel stressed. Remember that you are not alone!

Webinar of RANQ (regroupement des aidants naturels du Québec)

Webinar on Work-Life Balance for Caregivers | Mélanie Perroux | November 3, 2020 from 5:00 p.m. to 6:00 p.m.

Description:
Reconciling one’s professional responsibilities with those of a caregiver often requires tightrope walking skills. What does the law on labour standards provide to support family caregivers in the workplace?
What income compensation measures are available in normal and COVID-19 times?
Why talk to colleagues and employers about your status as a family caregiver?
Beyond the…

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