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Advocacy

Advocacy

For more information on advocacy, please consult Info Centre Parkinson.

Parkinson Québec represents people with Parkinson’s and their care partners through advocacy. Feel free to contact Parkinson Québec if you are in a situation that you find unacceptable, for example, with regard to staying in the workforce or insurance.

For Parkinson Québec’s position on key issues, visit the ABOUT section of our website.

A Parkinson’s diagnosis can be a shock. This degenerative neurological disease progresses slowly and particularly affects the parts of the brain that control movement. As the disease progresses, changes occur in the body and new symptoms appear. These symptoms may negatively affect your daily activities. It is therefore legitimate, for people looking for employment or who are employed, to have many questions about how these symptoms will impact their workplace. It is also an appropriate time to ask questions about the rights of affected people relative to their employer.

People suffering from a degenerative disease, such as Parkinson’s, who qualify as disabled under the Charter of Human Rights and Freedoms, have rights and responsibilities with regard to their employer. Employers also have rights and responsibilities regarding their employees. Furthermore, the rights and duties of employees and employers vary based on the context (prior to hiring, during employment and end of employment).

People living with Parkinson’s disease and their caregivers interact regularly with the various actors in the health care field. During visits in these institutions, public or private, people living with Parkinson’s disease may ask themselves about their rights.

“Each individual has the right to receive adequate health and social services, in a scientific, human and social manner, with continuity and in a personalized and safe way.”

This article will provide information on user rights in the health system, the specific rights of people living with Parkinson’s disease and the obligations of health facilities.

People who aren’t exposed to pesticides in their professional setting could, like farmers, incur an increased risk of developing Parkinson’s disease when farming activity is dense around where they live.

As the debate begins to take shape on Quebec Parliament Hill on the safety of pesticide use, other countries have already established laws on their use. France, for example, initiated this process in 2012 by recognizing Parkinson’s disease as a professional disease for farmers. It has thus identified the causal link between Parkinson’s disease in this population and their exposure to pesticides, in the broad sense (products for agricultural use, products intended for the maintenance of green spaces, as well as biocides and veterinary antiparasitic, whether they’re authorized or not at the time of request). This decision has a significant impact, as it allows patients exposed to pesticides for over 10 years to obtain financial compensation.

Through this report, Parkinson Québec is making the voices heard of all the people living with Parkinson’s disease, their families, their caregivers, and especially all Quebecers who are at risk of developing this disease because of their exposure to pesticides.

Pesticide exposure increases the risk of Parkinson’s disease by almost two-fold. The 2015-2018 Québec Pesticide Strategy mentions this association, and our report adds definitive elements on the causality that exists between exposure to pesticides and developing Parkinson’s disease.

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