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For more information on advocacy, please consult Info Centre Parkinson.

Parkinson Québec represents people with Parkinson’s and their care partners through advocacy. Feel free to contact Parkinson Québec if you are in a situation that you find unacceptable, for example, with regard to staying in the workforce or insurance.

For Parkinson Québec’s position on key issues, visit the ABOUT section of our website.

A Parkinson’s diagnosis can be a shock. This degenerative neurological disease progresses slowly and particularly affects the parts of the brain that control movement. As the disease progresses, changes occur in the body and new symptoms appear. These symptoms may negatively affect your daily activities. It is therefore legitimate, for people looking for employment or who are employed, to have many questions about how these symptoms will impact their workplace. It is also an appropriate time to ask questions about the rights of affected people relative to their employer.

People suffering from a degenerative disease, such as Parkinson’s, who qualify as disabled under the Charter of Human Rights and Freedoms, have rights and responsibilities with regard to their employer. Employers also have rights and responsibilities regarding their employees. Furthermore, the rights and duties of employees and employers vary based on the context (prior to hiring, during employment and end of employment).

People living with Parkinson’s disease and their caregivers interact regularly with the various actors in the health care field. During visits in these institutions, public or private, people living with Parkinson’s disease may ask themselves about their rights.

“Each individual has the right to receive adequate health and social services, in a scientific, human and social manner, with continuity and in a personalized and safe way.”

This article will provide information on user rights in the health system, the specific rights of people living with Parkinson’s disease and the obligations of health facilities.

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