Between the ages of 17 and 26, I was terribly ill. I would faint, I had burning sensations, rigidity, slow movements, difficulty walking and expressing myself, and so on. Despite my symptoms, no doctor was able to figure out what was wrong with me. I was in total disarray. What a distress!
When I was diagnosed with Parkinson’s disease at 27 years old, it was almost a relief. This early form is different: people under the age of 40 usually experience motor symptoms and the cause is usually genetics.
Although my medication has helped stabilize my condition, my rigid muscles make everything I do take time. In addition, I also have great difficulty speaking and very little endurance. All of this has led me to give up on my dreams over time.
“I was never able to finish my studies in translation. At 35 years old, one of my life’s greatest sorrows is not being able to have children.”
At the moment, no medication can reduce the progression of the disease, so I am fighting to preserve my autonomy on a daily basis. I live alone in an apartment with my cat and I receive disability benefits. Members of my family visit me regularly.
Essentially, I have learned to live with the disease through reading, among other things. The access of information offered by Parkinson Québec is a must. The support that Parkinson Québec gives me is very precious, because this organization really helps me to live with the disease as it progresses.
Please help those with Parkinson’s access the information they need to succeed in their daily struggle!
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